Follow Us

david

Stroll for Shine Recap

It’s a wrap on the 2023 Ottawa Stroll for SHINE!

As planned, the two Ottawa families affected by SHINE Syndrome and their families and friends walked 5kms on June 3rd 2023 in support of the various research projects led by the SHINE Syndrome Foundation.

Read More »

2023 Spring/Summer Fundraiser

In conjunction with our US sister foundation, The Shine Syndrome Foundation, we are currently fundraising for the development of an AAV, which is a potential

Read More »