In conjunction with our US sister foundation, The Shine Syndrome Foundation, we are currently fundraising for the development of an AAV, which is a potential treatment for people afflicted with SHINE Syndrome – DLG4-Related Synaptopathy.

We will be hosting a 5K walk as a fundraiser on June 3rd 2023, so if you’d like to support us, please click the DONATE NOW button above. All Canadian donations over $5 will immediately receive a tax-receipt via e-mail.

Please have a look at the video below of Dr. Rami Aqeilan, who is the lead researcher on this exciting new potential treatment.